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Engaging Older People and their carers to develop Interventions for the self-management of Chronic pain

Useful Organisations

Where can I find out more information?

British Complementary Medicine Association
PO Box 5122, Bournemouth, BH8 0WG
Phone: 0845 345 5977
Website: www.bcma.co.uk
A professional organisation which can help you to find a registered therapist.

British Pain Society
Third Floor, Churchill House, 35 Red Lion Square, London WC1R 4SG
Phone: 020 7269 7840
Website: www.britishpainsociety.org • Email: info@britishpainsociety.org
A professional organisation which aims to promote education, training,
research and development in all fields of pain. It aims to increase both
professional and public awareness of the power of pain and the facilities
that are available to help manage it. It also provides pathways (care options)
for patient care. The website includes a list of UK-based organisations that
specialise in helping patients with specific underlying conditions that cause
chronic pain.

Chronic Pain Policy Coalition
Policy Connect, CAN Mezzanine, 32-36 Loman Street, Southwark,
London, SE1 0EH
Phone: 020 7202 8580
Website: www.policyconnect.org.uk/cppc/
E-mail: rachel.downing@policyconnect.org.uk
A forum to unite patients, professionals and parliamentarians in developing an
improved strategy for preventing, treating and managing chronic pain and its
associated conditions.

Health and Social Care Alliance Scotland
Venlaw Building, 349 Bath Street, Glasgow, G2 4AA
Phone: 0141 404 0231• Fax: 0141 246 0348
Website: www.alliance-scotland.org.uk
E-mail: info@alliance-scotland.org.uk
The Alliance is the national voluntary-sector health- and social-care
intermediary. It brings together over 270 organisations to make sure people
and unpaid carers, and sector experts, can help shape policy and practice.

Healthtalkonline Database
Website: www.healthtalkonline.org
An online database of patients’ experiences, with information on around 50
health conditions.

NHS Inform
Website: www.nhsinform.co.uk
This organisation provides quality-assured health information for the public.

NHS24
Phone: 08454 24 24 24
Website: www.nhs24.com
An online and telephone-based service. They can answer your questions about
your health and offer advice at any time of the day.

National Chronic Pain Website for Scotland
Website: www.chronicpainscotland.org
Information, advice, education and resources for people with pain, their
families and carers, and healthcare professionals. Provides details of specialist
pain management services in Scottish NHS Boards and voluntary organisations.

Pain Association Scotland
Suite D, Moncrieffe Business Centre, Friarton Road, Perth, PH2 8DG
Phone: 0800 783 6059
Website: www.painassociation.com • Email: info@painassociation.com
Provides self-management training for people with chronic pain. Looks at
the non-medical issues, particularly the disabling effects of chronic pain
on people’s lives. The aim is to introduce people to, and quickly build, selfmanagement
skills, creating practical, positive change leading to an improved
quality of life and well-being.

Pain Concern
Unit 1-3, 62-66 Newcraighall Road, Fort Kinnaird, Edinburgh, EH15 3HS
Phone: 0131 669 5951
Website: www.painconcern.org.uk • E-mail: info@painconcern.org.uk
Facebook: facebook.com/painconcern • Twitter: @PainConcern
Provides information and support to people with pain and their carers and
aims to raise awareness about pain and improve pain management services.
Their Airing Pain radio show is a series of podcasts featuring the experiences
of people managing their everyday pain and interviews with internationally
recognised experts.

Their magazine Pain Matters contains news, features and comment on topics
including self-management techniques, research into pain treatments and
personal experiences of living with pain. They run a helpline and an online
community on HealthUnlocked which provides members with a forum to share
experiences.

Pain Support
Website: www.painsupport.co.uk
This website provides pain-relief techniques for those with chronic pain. There
is also a regular email newsletter, a discussion forum and a contact club for
making new friends, plus a shop for books, relaxation CDs and downloads.

Pain UK
Website: www.painuk.org
Aims to bring together pain charities in the UK to speak up about the needs of
the people they represent. It aims to provide training and support to member
charities, give information for people living with pain about where to find
support and raise awareness for new forms of support, when needed.

Self-management tools

Arthritis Care
www.arthritiscare.org.uk/LivingwithArthritis/Self-management

Centers for Disease Control and Prevention
www.cdc.gov/arthritis/interventions/self_manage.htm

Chronic Disease Self Management Program (CDSMP)
http://patienteducation.stanford.edu

Expert Patient Programme
www.nhs.uk/NHSEngland/AboutNHSservices/doctors/Pages/expertpatients-programme.aspx

Living with chronic pain
www.paincd.org.uk

Moodjuice
www.moodjuice.scot.nhs.uk

Pain Association Scotland
www.painassociation.com

Pain tool Kit
www.paintoolkit.org